Resources

If you believe or know you are affected by a FASD, love someone who is, and/or you provide care, services or support in our community, please check out some of these resources in consideration of your unique needs and place on your FASD journey.

Because we are working together on comprehensive awareness and support, this list is not complete and can grow and change along with our great work together.

FASD is Kākou Thing

If you’d like to be a part of adding to or updating this resources list, please email: info@fasdhawaii.org

Hawai’i-Based Resources & Information

Everyone should know :

HAWAI’I LEGISLATURE: ACT 192- A Bill for an Act Relating to Fetal Alcohol Spectrum Disorders

https://www.capitol.hawaii.gov/slh/Years/SLH2023/SLH2023_Act192.pdf

Getting Real about FASD in Hawai’i (Download brochure)

Legal and advocacy groups :

Hawai’i Disability Rights Center

https://hawaiidisabilityrights.org

Legal Aid Society of Hawai’i

https://www.legalaidhawaii.org

Hawai’i State Council on Developmental Disabilities

https://www.hiddcouncil.org

Hawaii Children’s Action Network

https://www.hawaii-can.org

Hawai’i Alcohol Policy Alliance

https://www.hiapa.org

Hawai’i FACT Sheet on FASDs (FASD United)

https://fasdunited.org/wp-content/uploads/2024/09/State-Data-Sheets-Hawaii.pdf

https://health.hawaii.gov/mchb/files/2013/05/HawaiiPerinatalAlcoholUseQuickFacts.pdf

Perinatal Supports :

Family Planning

https://health.hawaii.gov/mchb/home/family-planning-program

Perinatal Support

https://health.hawaii.gov/mchb/home/perinatal-support-program

Hospital Resources:

Kaiser PermanenteMaternity Classes 2024

https://www.kpinhawaii.org/sites/kpinhawaii/files/inline-files/Maternity%20Classes%202024.pdf

Queen’s Women’s Health Services

https://www.queens.org/services/womens-health

Kapiolani Fetal Diagnostic Center

https://www.hawaiipacifichealth.org/womens-centers/womens-services/groups/reproductive-health-maternity/fetal-diagnostic-center

Family Planning Service Clinics

https://health.hawaii.gov/mchb/files/2018/07/DOH-Provider2018.pdf

Parenting Support

https://health.hawaii.gov/mchb/home/parenting-support-programs

https://health.hawaii.gov/camhd/family-guidance-centers

Family Conversation Starters about Substance Use

https://hicares.hawaii.gov/2023/11/starting-the-conversation-about-drugs-or-alcohol

https://static1.squarespace.com/static/5c41979f372b96c9eedfd5a4/t/5e6a3514c6310850653a5127/1584018711083/Why+you+should+talk+with+your+child+about+alcohol+and+other+drugs.pdf

Perinatal Substance Use Disorder Training Modules

PSUD — Healthcare Association of Hawaii (hah.org)

Big Island:

Big Island Substance Abuse Council- Therapeutic Living Program

https://bisac.org/adult-services

Hui Malama Ola Na Oiwi

https://hmono.org/healthy-hapai-program

MAUI:

Malama Family Recovery Center, Maui, Hawaii

https://mbhr.org/agencies/malama-family-recovery-center

OAHU:

The Salvation Army Family Treatment Services, Honolulu, Hawaii

https://hawaii.salvationarmy.org

Women In Need Hawaii, Pearl City, Hawaii

https://winhi.org

DOH Substance Use Resources

https://health.hawaii.gov/substance-abuse

https://hicares.hawaii.gov

https://health.hawaii.gov/mchb/files/2018/07/DOH-Provider2018.pdf

Child screening guidance :

Hawai’i Pacific Health

https://www.hawaiipacifichealth.org/media/1343/genetics-fetal-alcohol-syndrome-screening-guidelines.pdf

Early intervention :

Hawai’i Early Intervention Services

https://health.hawaii.gov/eis/home/eiservices

Criteria: https://health.hawaii.gov/eis/home/eiservices/eligibilitycriteria

Developmental Disabilities Division

https://health.hawaii.gov/ddd

Criteria: https://health.hawaii.gov/ddd/files/2018/01/DDD-Intake-Booklet.pdf

Resources for teachers :

https://www.hawaiipublicschools.org/TeachingAndLearning/SpecializedPrograms/SpecialEducation/Pages/IEP.aspx

Programs for youth, adult and families :

Pono Roots

https://www.ponoroots.org/fasd-support

Parents and Children Together (PACT)—A neurocognitive habilitation program to improve self-regulation and executive function

https://pacthawaii.org

Lanakila Pacific

https://lanakilapacific.org/disabilityservices

The Arc in Hawaii

https://thearcinhawaii.org

Easter Seals Hawaii

https://www.eastersealshawaii.org/services

National Resources

FASD United Fact Sheet

https://fasdunited.org/wp-content/uploads/2022/02/FASD-Fact-Sheet.pdf
Fact-Sheet-for-Everyone-1

FASD Checklist- possibility of FASD

https://www.proofalliance.org/diagnosis/fasd-test

Kaiser Resources

https://healthy.kaiserpermanente.org/health-wellness/health-encyclopedia/he.fetal-alcohol-spectrum-disorder-fasd.tk3598

National SUD Resource (Zoom)

https://recoveringmothers.org

U.S. Department of Education- Protecting Students With Disabilities

https://www2.ed.gov/about/offices/list/ocr/504faq.html

Tools for Parents/Caregivers

https://fasdunited.org/tools-for-parents-and-caregivers

https://fasdunited.org/expectant-parents

Families Moving Forward (FMF)- A program to provide support for families who deal with challenging FASD behaviors

https://familiesmovingforwardprogram.org

https://fasdunited.org/family-navigator

Transition-Age-Youth-Navigator

Support services for people with FASD

Biofeedback
Auditory training
Relaxation therapy, visual imagery, and meditation (especially for sleep problems and anxiety)
Creative art therapy
Yoga and exercise
Acupuncture and acupressure
Massage, Reiki, and energy healing
Vitamins, herbal supplements, and homeopathy
Animal-assisted therapy

Teachers

Fact-sheet-for-Teachers

https://fasdunited.org/k-12-fasd-education-and-prevention-curriculum

https://do2learn.com/disabilities/FASDtoolbox

https://www.fasdoutreach.ca/resources/all/r/reach-to-teach-educating-elementary-middle-school-children-with-fetal-alcohol-spectrum-disorders

https://sites.duke.edu/fasd/chapter-4-the-fasd-student-and-the-classroom

Math Interactive Learning Experience (MILE)- A program to help with mathematics difficulty

https://med.emory.edu/departments/psychiatry/msacd/research/mile.html

Resource for Clinicians

https://familiesmovingforwardprogram.org/wp-content/uploads/2021/06/PAE-Clinician-Toolkit-06.08.21.pdf

https://store.samhsa.gov/product/tip-58-addressing-fetal-alcohol-spectrum-disorders-fasd/sma13-4803

https://downloads.aap.org/AAP/PDF/Coding%20for%20Fetal%20Alcohol%20Syndrome%20Disorders.pdf?_ga=2.228058581.990232826.1651122808-454175932.1651122808