FASD In Our Community

About FASD in Our Community

Compassion, Curiosity, Complexity

What is Fetal Alcohol Spectrum Disorder?

Fetal Alcohol Spectrum Disorders (FASD) are a spectrum of diagnosable conditions, ranging from the most serious Fetal Alcohol Syndrome (FAS), with a range of health conditions such as heart defects and visual and hearing impairments, to the often “hidden” lifelong neurological and neurodevelopmental disorders due to prenatal alcohol exposure.

These can cause more subtle issues such as sensory sensitivities and other functional, social, memory, and communication impairments.

The effects of an FASD, especially when unidentified, significantly increase:

School, behavioral, and learning challenges

The likelihood of mental and health and substance use disorders

Involvement in public safety and our court systems

Vulnerability in unsafe situations and with unsafe people

Alcohol is complicated. Pregnancy is too.

In Hawai’i, just like so many places around the world, alcohol is socially acceptable and legal for adult use. Alcohol has effects on the entire body for anyone who consumes it, and it isn’t safe at any time, in any amount, during pregnancy.

Because about half of pregnancies in Hawai’i are unplanned, and more than half of child-bearing age women drink pregnancy, the issue is not clear cut. People consume alcohol for any number of reasons, and simply telling women to “stop” is neither a compassionate nor comprehensive approach.

FASD is a condition that is not going to just go away. There are unique considerations for each individual and their families. Pregnant, birthing, and parenting people are not the only ones this issue should matter to. Alcohol use and its effects are highly complicated, and in Hawaiʻi we care about everyone in our communities…we don’t leave anyone behind.

How to support each other:
No one drinks to harm their child. Let’s be kind to ourselves and each other and focus on both prevention efforts and supporting special needs. Blame and shame don’t help us move forward.

FASD informed-approaches and interventions can be tried even before a formal diagnosis is made. It’s okay to wonder about how to help. Asking curious and kind questions is a good way to learn.

Many of our social, education, and public health systems in Hawaiʻi are just learning about prevalence and how complex FASD is. It will take time and a community effort to involve all the right people and systems.

A person with an FASD may:

Not know about FASD

Some effects of alcohol exposure in utero are not immediately diagnosed, or even observable. Long-term neurological effects may only be noticed later on in life.

Struggle with Memory

Memory is a common issue for people on the spectrum of fetal alcohol disorders. Other issues can include impulsivity, difficulty understanding directions, or reading social cues. These issues, if not properly supported, can compound and create more complex problems.

Need Extra Social Supports

People with brain-based neurodevelopmental disabilities might not have existing supports or services in place. There may be a need for special advocacy for supports that are RIGHT for each person, and can last throughout the lifespan.

Benefit from Strengths

Based Approaches-people with an FASD can have unique brains, and that can come in a lot of wonderful forms. Exploring all kinds of strengths, such as creative expression, can be an important focus in informed-approaches and the development of the right supports. Remember, neurodiversity IS diversity!

ADVOCACY

If you are a provider, a parent, a loved one, a person living with an FASD, or a kind and curious advocate, keep seeking information and support. All voices are needed to improve outcomes for everyone!
Tell a friend, talk to your doctor, ask a teacher or a social worker, call your legislator…EVERYONE SHOULD KNOW.

Let’s learn together!

I just found out I am pregnant. I have stopped drinking now, but I was drinking in the first few weeks of my pregnancy, before I knew I was pregnant. What should I do now?

It’s completely normal to feel worried if you drank before knowing you were pregnant. The important thing is that you’ve stopped now. While early alcohol exposure can carry risks, stopping alcohol for the rest of your pregnancy is the best step you can take for your baby’s health. Make sure to attend prenatal care appointments and talk openly with your healthcare provider—they are there to support you, not judge.

What is a “drink”? What if I drink only beer or wine coolers?

A “standard drink” contains about 14 grams of pure alcohol, and it doesn’t matter if it comes from beer, wine, wine coolers, or spirits. Even small amounts can affect a developing baby, so the safest choice is to avoid all alcohol.

Is it okay to drink a little or at certain times during pregnancy?

No amount of alcohol has been proven safe during pregnancy. Even occasional or small drinks can affect your baby’s brain and development. Choosing not to drink is the most supportive choice you can make for your baby’s lifelong health.

I drank wine during my last pregnancy and my baby turned out fine. Why shouldn’t I drink again during this pregnancy?

Every pregnancy is unique. Even if a previous pregnancy went well, alcohol exposure during this pregnancy could still carry risks. Making the choice to avoid alcohol now gives your baby the best chance to grow and thrive.

If I drank when I was pregnant, does that mean my baby will have an FASD?

Not necessarily. Not all babies exposed to alcohol will develop FASD. But alcohol does increase the risk, and it’s impossible to know who will be affected. Stopping alcohol now helps reduce that risk and supports a healthier pregnancy.

Is it okay to drink alcohol if I am trying to get pregnant?

The safest choice is to avoid alcohol while trying to conceive. Alcohol can affect fertility and early development—even before pregnancy is confirmed—so reducing alcohol now can help support a healthy start for your baby.

Can a father’s drinking cause harm to the baby?

A father’s drinking does not directly cause FASD, but heavy drinking can affect sperm health and increase the risk of reproductive challenges. Supporting a healthy pregnancy together, including healthy choices for both partners, can make a big difference.

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Amanda M. Luning, LMHC, IECMH-E®, Executive Director

Amanda has more than two decades of diverse experience in supporting people, programs, and systems to nurture and grow healthy families, including many years as a teacher, clinician, director, and community consultant. She appreciates kindness, good humor, curiosity and reflection, and facilitating things that support mutual respect, positive growth, and balanced wellness for the lāhui.

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Claire Barnes, Student Intern

Claire is a Bachelor of Social Work student with the Thompson School of Social Work and Public Health at the University of Hawaiʻi at Mānoa. She will be completing the field work component of her Bachelor’s degree as an intern for the Hawaii FASD Action Group and graduate in May of 2025.

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Stephanie W. Batzer, Esq., LSW, LLM

Ms. Batzer is an attorney focusing in the practice of child law. She has been a child advocate since 2012, and works on custodial and child welfare issues throughout the Hawaiian Islands. She believes that every child deserves a safe, loving, and happy home. Ms. Batzer served twenty-two years in the U.S. Army Signal Corps, retiring in Hawaii. Ms. Batzer serves as Secretary and Director on the Hawaii FASD Action Group Board of Directors.

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Ms. Batzer grew up in New York, and as she moved to Maryland to attend college, she became a citizen of the world. Her military service has taken her to Georgia, the Military District of Washington D.C., Turkey, Kansas, the Republic of South Korea, and, finally to Hawaii, where she met and married her husband, Dr. Wayne Batzer, a child and adolescent psychiatrist. They enjoy wide-flung dive travel adventures, the occasional cruise, and hold Palau as a dear place in their hearts. That said, they love the magic they find here in the Hawaiian Islands, and are always happiest exploring their wonders.

Ms. Batzer holds a Master of Laws in Child and Family from Loyola University of Chicago, a Juris Doctor and Master of Social Work from the University of Hawaii, a Master of Science in Information Systems from Hawaii Pacific University, and a Bachelor of Arts in Political Science from Johns Hopkins University. She believes you should never stop learning, and recently completed her Child and Family Forensics Certificate from the William James College Center of Excellence in Children, Family, and the Law. In 2015, she was honored to be recognized as co-author of an article published in Trauma, Violence & Abuse: A Review Journal (Batzer, S., Berg, T., Godinet, M. & Stotzer, R. (2015). Efficacy or chaos? Parent-child interaction therapy in maltreating populations: A review of research. Trauma, Violence & Abuse: A Review Journal, 16.).

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Erika Phelps Nishiguchi, MD

Erika Phelps Nishiguchi, MD is a board-certified Developmental Behavioral Pediatrician with strong interest in improving access to diagnosis and interventions for children with neurodevelopmental disabilities. She joined Hawai’i Pacific Health and JABSOM in early 2023 after completing sub-specialty training at Rainbow Babies and Children’s Hospital in Cleveland and Seattle Children’s Hospital.

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She became interested in FASD due to interest in adoption medicine, environmental impacts on early childhood development, and sensitivity to concerns with race-based instruments used in medicine. Concerns for bias, stigma, and the challenges facing general pediatricians and subspecialists in identifying and diagnosing FASD led Erika to join a working group within the American Academy of Pediatrics to update the Academy’s Clinical Report on FASD. This group is also authoring a Technical Report on cultural considerations in the diagnosis and management of FASD. The AAPI population is not well represented in the current evidence base for FASD, which drives Erika’s particular interest in learning more about FASD in the populations in our state.

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[et_pb_section fb_built=”1″ _builder_version=”4.16″ custom_padding=”||0px||false|false” collapsed=”off” global_colors_info=”{}”][et_pb_row column_structure=”2_5,3_5″ _builder_version=”4.24.2″ hover_enabled=”0″ collapsed=”off” global_colors_info=”{}” make_equal=”on” sticky_enabled=”0″][et_pb_column type=”2_5″ _builder_version=”4.24.2″ hover_enabled=”0″ global_colors_info=”{}” custom_css_main_element=”align-self:center;” sticky_enabled=”0″][et_pb_image src=”https://fasdhawaii.org/wp-content/uploads/2024/06/Arlina-J-Wong-1.jpg” title_text=”Arlina J Wong” _builder_version=”4.24.2″ global_colors_info=”{}”][/et_pb_image][/et_pb_column][et_pb_column type=”3_5″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text admin_label=”Arlina J. Wong, Hawaii Executive Director
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Arlina J. Wong, Hawaii Executive Director, Acumen Fiscal Agent

The reason I reached out to participate with FASD is because of my work with families who have loved ones with developmental disabilities. They often thank us for having a program that allows families to provide needed services by family and friends, and I began to realize that those with FASD may not have that opportunity. My goal is for FASD to be recognized as a diagnosis that will allow families and individuals to obtain needed services at every stage of life, with the goal of a better quality of life for themselves and their families. With my experience in this field, contacts, and networking abilities I can enhance the education and advocacy work being done by the FASD Action Group to bring these goals to fruition.

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Jane Onoye, PhD, Associate Professor

Jane Onoye is an Associate Professor in the Research Division of the University of Hawaiʻi JABSOM Department of Psychiatry, with more than 15 years of experience as a mental health researcher in areas of maternal/child health, alcohol/substance use, and injury/violence prevention, and as an evaluator for a diverse range of projects and programs in Hawaiʻi. She has been most recently involved in several projects funded by the Hawaiʻi Department of Health Alcohol and Drug Abuse Division (ADAD). Dr. Onoye served as the Principal Investigator for the Hawaiʻi Student Alcohol, Tobacco, and Drug Use (ATOD) Survey, which was a statewide school-based needs assessment for youth alcohol and substance use prevention and treatment.

[/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.16″ custom_padding=”0px||||false|false” collapsed=”off” global_colors_info=”{}”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text admin_label=”She also serves as the Director for the” _builder_version=”4.18.0″ header_2_font=”Didact Gothic|700|||||||” header_2_text_color=”#000000″ header_2_font_size=”22px” header_2_line_height=”1.2em” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]

She also serves as the Director for the ADAD State Plan project Systems of Care Implications Core, which examines the current literature and available data systems to describe the intersections of substance use among public sectors and disparities related populations with implications for Hawaiʻi’s systems of care. Dr. Onoye was also the lead evaluator for the Hawaiʻi Department of Health Core State Violence and Injury Prevention Program, and is currently the Evaluation Director for the Hawai‘i IDeA Network of Biomedical Research Excellence (INBRE) Program.

Selected Publications & Reports Related to Fetal Alcohol Spectrum Disorders:

Onoye, J. M., & Thompson, M. D. (2017). Challenges and progress in building a comprehensive statewide system for fetal alcohol spectrum disorders prevention in Hawai’i. Maternal and Child Health Journal, 21(5), 1002-1009.

Pascal, E., Onoye, J., & Hayes, D. (2014). Impact of a perinatal support services program on alcohol risk reduction in an ethnically diverse population. Alcoholism: Clinical and Experimental Research, 38 (s1), 258A.

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Sina P. Pili, MSW

Sina P. Pili is a Pacific Islander woman of Native Hawaiian and Samoan ancestry raised in La’ie on the North Shore of Oahu. Married to Davis Pili and together they have four precious children. In her personal time, she enjoys spending quality family time, traveling, eating good food, and serving within her home community and church capacity.

With over ten years working in the social work and behavioral health field, Sina has experience working with children, youth, adults and families. Sina is a Behavioral Health Specialist for the Department of Education. [/et_pb_text][/et_pb_column][/et_pb_row][et_pb_row _builder_version=”4.16″ custom_padding=”0px||||false|false” collapsed=”off” global_colors_info=”{}” locked=”off”][et_pb_column type=”4_4″ _builder_version=”4.16″ global_colors_info=”{}”][et_pb_text admin_label=”She is an advocate for FASD awareness ” _builder_version=”4.18.0″ header_2_font=”Didact Gothic|700|||||||” header_2_text_color=”#000000″ header_2_font_size=”22px” header_2_line_height=”1.2em” hover_enabled=”0″ global_colors_info=”{}” sticky_enabled=”0″]

She is an advocate for FASD awareness and informed services within the school systems. She has participated annually in the summer academy statewide training for the School Based Behavioral Health Department presenting on FASD informed services and strategies to work with students diagnosed with FASD. She continues to provide FASD awareness & education by presenting to organizations such as Parent & Children Together, Leadership in Disabilities & Achievement of Hawai’i Traveling Mini Conference, and etc. provided through the Hawai’i FASD Action Group. Sina is the lead facilitator for the Hawai’i FASD Action Group Parent & Caregiver Support group.

Sina received a Bachelor of Arts in Psychology from the Brigham Young University-Hawai’i and then a Masters in Social Work from the University of Hawai’i. She is a student in the PhD Social Welfare program at the University of Hawai’i with research interests in perinatal mental health, children’s mental health, Prenatal Alcohol Exposure, Fetal Alcohol Spectrum Disorders, and FASD Behavioral Health informed services in school systems.

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Vivian Aiona

Born and raised in Honolulu, Vivian Aiona retired in 2002, from a 25-year career in the airlines. Having raised four children with her husband Duke Aiona, Vivian then poured herself into her church and community, advocating for family, and social issues.

Vivian has served on boards such as the Salvation Army and the former Fetal Alcohol Task Force, and she led the Bereavement Ministry at her church for ten years; she now oversees the Respect Life Ministry at the same place of worship, concentrating on LIFE issues affecting our keiki to kupuna.

Also, having worked alongside her husband for the non-profit Hawaii Family Advocates, sister organization of the Hawaii Family Forum, Vivian has a deep conviction to lift and support Hawaii’s families.[/et_pb_text][/et_pb_column][/et_pb_row][/et_pb_section]

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Alan H. Shinn

Over 40 years of administration, management, and direct service experiences with non-profit organizations providing substance abuse, mental health, youth and family, and developmental disabilities services in Hawaii and California. As the Executive Director for Coalition for a Drug-Free Hawaii, 2001- 2016, oversaw management of personnel, diverse programs, and complex funding resources. Responsible for fundraising activities through governmental and private sources. Provided vision and leadership for the Board of Directors, staff, and volunteers in areas of program development and fundraising. Represented agencies before the public and advocated for needs of diverse ethnic populations and disabilities groups. Provided leadership and representation to various multicultural, human services, and community-based service collaboratives. Currently retired. Enjoy walking dogs, surfing, and helping to care for my 98-year old mother, while practicing “safe in place” activities with my wife due to the pandemic. [/et_pb_text][/et_pb_column][/et_pb_row][/et_pb_section]

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K. Ken Yabusaki, Ph.D.

K. Ken Yabusaki is a retired biochemist. After completing his postdoctoral research at the University of California at Berkeley, Ken spent ten years co-founding three small biotechnology companies in the design/development of immunodiagnostic and DNA tests in the San Francisco Bay and San Diego, California areas. Dr. Yabusaki then spent the next fifteen years consulting in biotech industries in biomedical test development and was a researcher at the University of Hawaii’s John A. Burns School of Medicine. He is an Army veteran, serving as a Chemical and Special Weapons officer with the Airborne during the Vietnam War. He enjoys nature, fishing, and gardening with his wife, travel, grandparenting, and writing poetry.

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Before moving to Hawaii, Ken volunteered in civil/human rights advocacy as co-president, board member, and a trustee for the Berkeley Chapter of the Japanese American Citizens League. He is currently writing his memoirs, philosophical essays, and poetry. Ken and his wife, Ann enjoy fly fishing, travel abroad, touring the U.S. National Parks, being in Nature, and gardening.

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Ann S. Yabusaki, Ph.D., MFT

Ann is a psychologist and marriage and family therapist with a certificate in the treatment of alcohol and other chemical dependencies. Over her 35 years of practice, she provided technical assistance to federal government agencies, consulted to community agencies several who served bilingual and monolingual clients and published and lectured nationally on families, substance abuse, and culture. She served as administrator and faculty of several graduate schools of psychology in the San Francisco Bay Area. She enjoys nature and fishing with her husband and spending time with her children and grandchildren.

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She helped to develop one of the first doctoral psychology programs in the United States, integrating cultural perspectives in all aspects of the curriculum. She developed and served as clinical director of the Family Intervention and Training Services at the Coalition for a Drug-Free Hawaii, where she supervised students and worked with families from the family court and school systems.

Dr. Yabusaki has advocated for human/civil rights for most of her career. She served as co-president and for many years on the Board of Directors of the Japanese American Citizens League, Berkeley Chapter. In 2016 she co-founded the Fetal Alcohol Spectrum Disorders (FASD) Action Group, volunteers who advocate for services for individuals, families, and communities affected by FASD. She currently practices in Honolulu. She and her husband retreat to nature often, fly fishing in mountain streams or salmon fishing in Canada.

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Cleo Brown, Principal Consultant, Community Advocate

After 30 years in executive leadership roles with multi-national financial service groups where she made community outreach a pillar of her success, she retired in 2000 to launch her own consulting practice focused on small business and nonprofit development. She is currently Vice-Chair on the Lanakila Pacific Foundation Board of Directors; Chaminade’s Hogan Entrepreneurs Advisory Group, Moanalua Gardens Foundation, and an SBA Mentor on its Emerging Leaders Program.

Cleo is married 55 years to Carl Brown, Retired Honolulu Police Dept. and they have three adult daughters, one adult son, and seven grandchildren all born and raised in Hawai’i.

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Professional History:

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Community Volunteer:

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