University of Rochester Medical Center seeking children 3 to 12 yrs. diagnosed with FASD or known prenatal alcohol exposure to participate in a research study. Study includes the use of an app and monetary compensation.
In this study, we describe the nutritional status of women from a South African community with very high rates of fetal alcohol spectrum disorders (FASD). Nutrient intake (24-hours recall) of mothers of children with FASD was compared to mothers of normal controls....
Pediatricians and obstetricians could have another scientific weapon to yield in their pursuit of protecting newborn babies who may have been exposed to alcohol in the womb because of an original study published by researchers at the Wayne State University School of Medicine.
Until now, animal and human studies have shown the relationship of maternal alcohol use and adverse fetal and infant effects, but studies correlating the biomarkers of alcohol exposure in the infant to adverse effects have been limited.
A team of experts from across Canada and the US have developed the first ever medication algorithm for individuals with Fetal Alcohol Spectrum Disorder (FASD). CanFASD Research Leads Dr.’s Mansfield Mela and Ana Hanlon-Dearman and CanFASD Family Advisory Committee’s Dorothy Reid are among the co-authors of the study. This algorithm is now an important tool available for clinicians to use to treat individuals with FASD (children and adolescents aged 7 and above, and adults).
Sina P. Pili is a Pacific Islander woman of Native Hawaiian and Samoan ancestry raised in La’ie on the North Shore of Oahu. Married to Davis Pili and together they have four precious children. In her personal time, she enjoys spending quality family time, traveling, eating good food, and serving within her home community and church capacity.
With over ten years working in the social work and behavioral health field, Sina has experience working with children, youth, adults and families. Sina is a Behavioral Health Specialist for the Department of Education.
She is an advocate for FASD awareness and informed services within the school systems. She has participated annually in the summer academy statewide training for the School Based Behavioral Health Department presenting on FASD informed services and strategies to work with students diagnosed with FASD. She continues to provide FASD awareness & education by presenting to organizations such as Parent & Children Together, Leadership in Disabilities & Achievement of Hawai’i Traveling Mini Conference, and etc. provided through the Hawai’i FASD Action Group. Sina is the lead facilitator for the Hawai’i FASD Action Group Parent & Caregiver Support group.
Sina received a Bachelor of Arts in Psychology from the Brigham Young University-Hawai’i and then a Masters in Social Work from the University of Hawai’i. She is a student in the PhD Social Welfare program at the University of Hawai’i with research interests in perinatal mental health, children’s mental health, Prenatal Alcohol Exposure, Fetal Alcohol Spectrum Disorders, and FASD Behavioral Health informed services in school systems.
Jane Onoye is an Associate Professor in the Research Division of the University of Hawaiʻi JABSOM Department of Psychiatry, with more than 15 years of experience as a mental health researcher in areas of maternal/child health, alcohol/substance use, and injury/violence prevention, and as an evaluator for a diverse range of projects and programs in Hawaiʻi. She has been most recently involved in several projects funded by the Hawaiʻi Department of Health Alcohol and Drug Abuse Division (ADAD). Dr. Onoye served as the Principal Investigator for the Hawaiʻi Student Alcohol, Tobacco, and Drug Use (ATOD) Survey, which was a statewide school-based needs assessment for youth alcohol and substance use prevention and treatment.
She also serves as the Director for the ADAD State Plan project Systems of Care Implications Core, which examines the current literature and available data systems to describe the intersections of substance use among public sectors and disparities related populations with implications for Hawaiʻi’s systems of care. Dr. Onoye was also the lead evaluator for the Hawaiʻi Department of Health Core State Violence and Injury Prevention Program, and is currently the Evaluation Director for the Hawai‘i IDeA Network of Biomedical Research Excellence (INBRE) Program.
Selected Publications & Reports Related to Fetal Alcohol Spectrum Disorders:
Onoye, J. M., & Thompson, M. D. (2017). Challenges and progress in building a comprehensive statewide system for fetal alcohol spectrum disorders prevention in Hawai’i. Maternal and Child Health Journal, 21(5), 1002-1009.
Pascal, E., Onoye, J., & Hayes, D. (2014). Impact of a perinatal support services program on alcohol risk reduction in an ethnically diverse population. Alcoholism: Clinical and Experimental Research, 38 (s1), 258A.
Ann is a psychologist and marriage and family therapist with a certificate in the treatment of alcohol and other chemical dependencies. Over her 35 years of practice, she provided technical assistance to federal government agencies, consulted to community agencies several who served bilingual and monolingual clients and published and lectured nationally on families, substance abuse, and culture. She served as administrator and faculty of several graduate schools of psychology in the San Francisco Bay Area. She enjoys nature and fishing with her husband and spending time with her children and grandchildren.
She helped to develop one of the first doctoral psychology programs in the United States, integrating cultural perspectives in all aspects of the curriculum. She developed and served as clinical director of the Family Intervention and Training Services at the Coalition for a Drug-Free Hawaii, where she supervised students and worked with families from the family court and school systems.
Dr. Yabusaki has advocated for human/civil rights for most of her career. She served as co-president and for many years on the Board of Directors of the Japanese American Citizens League, Berkeley Chapter. In 2016 she co-founded the Fetal Alcohol Spectrum Disorders (FASD) Action Group, volunteers who advocate for services for individuals, families, and communities affected by FASD. She currently practices in Honolulu. She and her husband retreat to nature often, fly fishing in mountain streams or salmon fishing in Canada.
K. Ken Yabusaki is a retired biochemist. After completing his postdoctoral research at the University of California at Berkeley, Ken spent ten years co-founding three small biotechnology companies in the design/development of immunodiagnostic and DNA tests in the San Francisco Bay and San Diego, California areas. Dr. Yabusaki then spent the next fifteen years consulting in biotech industries in biomedical test development and was a researcher at the University of Hawaii’s John A. Burns School of Medicine. He is an Army veteran, serving as a Chemical and Special Weapons officer with the Airborne during the Vietnam War. He enjoys nature, fishing, and gardening with his wife, travel, grandparenting, and writing poetry.
Before moving to Hawaii, Ken volunteered in civil/human rights advocacy as co-president, board member, and a trustee for the Berkeley Chapter of the Japanese American Citizens League. He is currently writing his memoirs, philosophical essays, and poetry. Ken and his wife, Ann enjoy fly fishing, travel abroad, touring the U.S. National Parks, being in Nature, and gardening.
After 30 years in executive leadership roles with multi-national financial service groups where she made community outreach a pillar of her success, she retired in 2000 to launch her own consulting practice focused on small business and nonprofit development. She is currently Vice-Chair on the Lanakila Pacific Foundation Board of Directors; Chaminade’s Hogan Entrepreneurs Advisory Group, Moanalua Gardens Foundation, and an SBA Mentor on its Emerging Leaders Program.
Cleo is married 55 years to Carl Brown, Retired Honolulu Police Dept. and they have three adult daughters, one adult son, and seven grandchildren all born and raised in Hawai’i.
Born and raised in Honolulu, Vivian Aiona retired in 2002, from a 25-year career in the airlines. Having raised four children with her husband Duke Aiona, Vivian then poured herself into her church and community, advocating for family, and social issues.
Vivian has served on boards such as the Salvation Army and the former Fetal Alcohol Task Force, and she led the Bereavement Ministry at her church for ten years; she now oversees the Respect Life Ministry at the same place of worship, concentrating on LIFE issues affecting our keiki to kupuna.
Also, having worked alongside her husband for the non-profit Hawaii Family Advocates, sister organization of the Hawaii Family Forum, Vivian has a deep conviction to lift and support Hawaii’s families.
Over 40 years of administration, management, and direct service experiences with non-profit organizations providing substance abuse, mental health, youth and family, and developmental disabilities services in Hawaii and California. As the Executive Director for Coalition for a Drug-Free Hawaii, 2001- 2016, oversaw management of personnel, diverse programs, and complex funding resources. Responsible for fundraising activities through governmental and private sources. Provided vision and leadership for the Board of Directors, staff, and volunteers in areas of program development and fundraising. Represented agencies before the public and advocated for needs of diverse ethnic populations and disabilities groups. Provided leadership and representation to various multicultural, human services, and community-based service collaboratives. Currently retired. Enjoy walking dogs, surfing, and helping to care for my 98-year old mother, while practicing “safe in place” activities with my wife due to the pandemic.
